Just Charlie G
07. 11. 2015

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It’s been a long time since I’ve done a post about our assessment journey with Chloe and life at home.

In truth, nothing has changed much. We are still awaiting two assessments with Camhs and the ASC team. We have a wonderful support worker who has been fighting our corner really hard and Camhs have now said Chloe is near the top of the list and our wait shouldn’t be much longer. But that was a few weeks ago now, so any hopes that things would move quickly have disappeared and I’m pessimistic again.

Chloe has taken a huge down turn with her anxiety, and things have been difficult. She struggles to go anywhere now that isn’t extremely familiar (Supermarket, park, school), and she won’t entertain any journey that is outside of our town, so we are unable to visit relatives or take a trip to the local forest, or beach. Basically we can’t go anywhere. She recently had to miss a school residential trip, which was so sad, as she so wanted to go, she just couldn’t. That said, we’ve had some big successes lately, and Chloe has managed to do a few things that she previously couldn’t. The behaviour issues are all still there, along with the hyperactivity. The residential bought things to a head a little more and the school have been more helpful since, I don’t think they realised quite how bad things are until then.

The other thing that seems successful is that Chloe now sees a Counsellor weekly, she enjoys it.

I’ve had cause recently to reflect on just how much extra care Chloe requires, I won’t go into why I’ve had to do this but to see it written down is really eye opening and a little upsetting. As a parent you just get on and do, and the really bad days are the ones that stand out, but actually each day is pretty hard going for various reasons. Starting with just the simple task of getting ready for school in the morning… taking up to 45 minutes to get dressed, not brushing her teeth properly, if at all. Tantrums and screaming matches if you dare to ask her to hurry. That’s a standard morning and actually features nowhere on the list of bad days. That’s just standard. It’s just one small example and I know that lots of parents will related to the not getting out of the house easily in the mornings. But imagine every single step of the day being the same. And then add a load of extra stuff on top for extra fun. I think I’ve talked about the details quite a lot so I’ll resist going into it all again.

I’m increasingly frustrated at the system, but again, I’ve moaned about that before, and I’m always wary when moaning about the assessment waits, after all, its not the fault of Camhs, the cuts have been crippling, and although life seems too much for us sometimes, actually there are so many far worse of its natural that we are lower on the priority list, but even so, as time passes, our priorities are changing as we become more housebound!

In other news, Chloe was 9 last month. Nine Years! Where has that time gone! As she’s growing and defining her tastes its becoming clear that she’s a little fashionista. She absolutely loves clothes, so long as they are black 🙂

CJ9-21-Charlotte-Chloe-20151018-850

So there we have it, not much has changed, we’re still waiting. Nothing much to report, other than increased anxiety, but it has to be said, that while that aspect of Chloe’s life has deteriorated (and therefore ours) Chloe has been incredible when overcoming some of her fears lately!

If this is something you are going through and you are interested to read more about our journey, you can find all my related posts here.

20 responses to “Update On Chloe”

  1. Claire says:

    Oh bless her, you sound like such a loving mother. It’s good that she has counselling once a week, I hope your wait on the list isn’t too long.

  2. I can’t imagine what it must be like. I really hope your appointment comes through soon, and you can get more support in place. It sounds like you are winning, and she is a gorgeous young lady. Love her taste in clothes 🙂

    • justcharlieg says:

      Thanks Zena, she does love her clothes… I was in baggy jeans and tshirts until I was 15 so this is a whole new world for me!

  3. Jaime Oliver says:

    my heart foes out to you, we were on this journey for the last 5 years and its been the most epic battle with the system to get my daughter the help that she needed.

    sending you the biggest hugs

    • justcharlieg says:

      Thank you. I’m sorry to hear this, but not surprised, this is our third year of waiting for assessment now…. thank you x

  4. Ickle Pickle says:

    Oh bless Chloe – and you, it must be so difficult for you both. I trained as a counsellor and if she has s good one it will really help her. Kaz x

    • justcharlieg says:

      Thank you Kaz, its early days with the counsellor, but Chloe likes her and enjoys seeing her which is a good start… x

  5. reading about Chloe reminds me of myself at her age. I was diagnosed has having a school phobia, which they later changes to a social phobia. I hated going out and was very panicky. As an adult I have suffered with depression, and it seems to go hand in hand with my social phobia. I am now on medication for them and they are both under control, but I think this is something that I am going to have to live with all my life

    • justcharlieg says:

      I’m really sorry to hear this. I am grateful Chloe has no issues with school, I think thats one of her “safe” places. That must have been stressful for you, it must still be at times, but it is good to hear you have some control now. xx

  6. Rachel says:

    I am glad that in the midst of Chloe’s anxiety worsening that there have been some good things happen, no matter how small x

  7. Jenny says:

    What an awful situation for you all having to wait for appointments for help. I have no experience of this but I’m glad your daughter brings you such happiness too, sounds like you can have fun online shopping together 🙂

  8. Charlotte says:

    Sorry to hear she is struggling! Anxiety is awful! xx

  9. Louise says:

    Oh bless her heart. I am keeping everything crossed that you get all the help you need soon. Big hugs to you both X

  10. Sabina Sher says:

    It’s great of you to write such a post as this one – I think it will help a lot of people who may be in a similar situation x

  11. Reading this has opened my eyes to a few things. I have a few friend who have anxiety disorders, but I’d never thought about a child suffering with it before. You clearly are an amazing person, and I hope you and she gets the help you deserve

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